I have been trying to get pictures of Caden nearly every day this past week so that you can see how well he is healing. The problem is, he is one fast little monkey and all of the photos end up blurry. This normally is frustrating, but it just shows me that he is feeling well enough to run like he used to. I count it as a blessing. He is doing so well! His sutures are starting to dissolve and he is starting to slowly feel his sutures and his head which is good because that shows me that it isn't hurting him as much anymore. He is completely off the loratab, the strong pain medicine, so we just use Motrin and Tylenol when he doesn't feel well. His random crying spells have appeared to be a little less everyday as well. God is so good! Now if we could get his eating habits back to what they were pre-surgery, then it would be perfect. There are times that he will eat his old normal food without any issues, but more often then not he spits out foods that he doesn't like. This is extremely frustrating because there is nothing really that I can do but be patient and just be encouraging. Makes me feel like a failure when your son refuses to eat his favorite foods. It's weird because one day he will eat just fine, the next day not at all- and it can be the exact same food, so there is no rhyme or reason to the craziness. I am hoping this is a phase...and I am praying it goes by fast. On a happier note, he is sleeping through the night again, THANK THE SWEET LORD, because that was ROUGH! When you are used to getting a full nights sleep and all of a sudden you have to get up 8x or more, it makes for one scary looking mommy, one that coffee can't even fix, in the morning.
Caden has his post-op appointment this upcoming Wednesday at Texas Children's Hospital. It will be with both the plastic surgeon and the neurosurgeon. I am expecting a fabulous report because Caden is doing so fabulously well.
I received an email from a dear nursing school friend, and her friend recently had a child that was born with saggital craniosynostosis and I was able to forward her all of my information and research. I ask all of you to please put this baby and their family in your prayers. As of now, I don't have much information regarding this family. I also have the opportunity to speak with my son's Pediatric clinic doctors and educate them regarding early detection of craniosynostosis. I am not sure when I will be doing that, but I know that I am honored. Knowing that my husband was affected by craniosynostosis and I am now a Cranio Mom, I will be doing everything that I can to promote education regarding this condition. This is something that has been placed heavy on my heart, and if one child can be spared because of early detection then I know I did well. As we reached out to some Cranio families for support and education, they also sent us care packages for when we were in the hospital. I would like to assist in that as well. So, I am asking you, the next time you have an extra dollar or two, go down the dollar isle at Wal-Mart or Target and pick up kleenex, shampoo or deodorant. There are other things as well that you can do instead of purchasing items, one thing is making a prayer chain. If you look at my pictures you can see what the prayer chain looked like. It is made of ribbon, and each chain has an encouraging phrase or Bible verse on it. The prayer chain is about 10 links long. I will be sending out these goodies to Cranio Care Bears once a month so that they can have assistance when sending out the packages to all the families that are facing surgery. If you are interested in assisting me with helping families that are facing one of the most difficult time in their lives and want to help ease their pain a little bit, please message me. I will give you my address if you want to mail me goodies for me to send them, or I will even drive to your home or meet halfway to pick them up. Please know that anything that you do will make a big difference in the lives of families. Knowing that there were people out there that I had never met, who cared enough about me to pray for me and send me a package...meant so much to me. I want to pass that feeling on. I want them to know that they are not alone, that there are many people out there that are behind them lifting them up in prayer, like you did for Caden and my family. I could not have made it through this without you all. I love everyone one of you and appreciate you more than you will ever realize. I want to pass the love that you have shown me on to other hurting families. I want to be a witness to them, let them know that in this terrifying time God is in control. He always was, and always will be- Caden is proof of that.
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